Joy lies in the fight, in the attempt, in the suffering involved, not in the victory itself

(Ghandi)
Showing posts with label Chiari. Show all posts
Showing posts with label Chiari. Show all posts

Sunday, November 15, 2009

between fight and flight is the blind man's sight

Herewith a brief update on the Life of Lil.

My grandmother is home from hospital, and much better. The infection has cleared up, and with its passing has come the welcome passing of the dementia (apart from her normal 91- year-old befuddledness). The Aged Care Assessment Team have recommended, though, that she be placed in permanent care now her health is deteriorating, unless one of us can be home with her at all times. That's just not financially possible as we aren't entitled to any carer's allowances from the government, and both my parents are still working. Usually Nanna is only home one or two days a week on her own, but that's too much now. So we've started the process of finding a decent nursing home for her. She's quite happy about the idea, as she gets lonely here on her own and while she was in hospital she told us she enjoyed having other people around all the time. There are a few places locally, and we'll try to get her in to somewhere nicer and newer with a good reputation. Aged care seems to be one of those areas that there is a major difference between the top and bottom "levels" even though it's supposed to be regulated and checked by the government.

In the midst of all this, Michelle and I finally heard on Friday that we got our house! We're signing the lease on Monday, and I have started the daunting task of packing. So far, there are 11 boxes OF BOOKS ALONE! We have a study nook/office area at the new place which Michelle has suggested I set up as a reading room - which is a great idea and such a relief as I wouldn't know where to put all the darn books otherwise. I can't part with them, though, they have been my best friends through the years. What is weird, given my bizarre childhood and tenuous relations with family, is that it seems strange and scary to be moving away from my mom. We've only become close in the last few years, partly through living together and sharing the care of nanna. Especially in the last 12 months, during my breakdown, we've actually connected on an adult and non-angry level. I hope that doesn't change once I'm gone from here. She's been supportive and positive about the move, which is awesome. For the first time in 12 years I'm going to be living solo, albeit with a roomie!

Mostly, I am thrilled about the opportunity to form my own independent life again and to live with Michelle will be a lot of fun. We have a lot in common and are more like sisters (she's 13 years younger than me). I can't wait to be closer to the city, and to my workplace, and to be released from the watching nanna, cooking, cleaning regime. Obviously my own place will need cleaning, and my own meals need cooking, but not in the same institutional way! I bought a new washing machine and a vacuum cleaner as well as some of the boring domestic supplies. The big moving day is Saturday 21st November. Wish me luck!!

Health-wise, I am still thriving on the current med combination and am managing to sleep well. I have my neurologist appointment tomorrow to find out more about the Borderline Chiari Malformation that showed up on my MRI. The headaches are still there, but I'm dealing with them, so if nothing comes from the specialist then it's no big deal. I'd rather avoid the "removing part of my skull" operation if at all possible LOL.

Monday, September 21, 2009

it's only life after all*

You'll laugh.

Dr A went over the report from my MRI and while I have no tumours or lesions (thank you Google Images) apparently I DO have inferior cerebellum tonsils, which consitutes a congenital brain abnormality called Chiari Malformation. Except, the degree of abnormality is such that it's know as a BORDERLINE Chiari. I kid you not. Even my brain is f'n borderline!!!!! I had to laugh. It may or may not be the cause of my headaches, so now I have to see a specialist neurologist for more testing. It's not fatal, just debilitating, and sadly it cannot take the blame for my general mental wackiness.

I can't believe I have some other blasted "Borderline" condition. Maybe I should look around for some more Borderline diagnoses, I can start a collection. It takes up less room than snow globes.

(*Closer to Fine, again!)