Thank you so much to be darling friends for your comments previously. I wish I could say things have improved. They are made markedly worse, at the least complicated, by the re-appearance of my lupus in a hideous whole body flare that threatens to render me inert. (FYI - Lupus, or Systemic Lupus Eurythematosus is an autoimmune disorder, whereby the body's immune system attacks itself, eg: organs, joints, skin, rather than attacking external threats like bacteria or viruses. It's usually hereditary and incurable).
I'm not foolish enough to gloss over the connection...mind/body medicine is one of the things that cured my fibromyalgia (kind of similar to chronic fatigue and sometimes connected with lupus) and helped control my lupus, so I know that what I think and feel is reflected in my physical wellbeing. The fact that I've been struggling with some emotional issues has left me fatigued and rundown, and a perfect target for a lupus flare. So far it has shown up as joint pain (particularly my hands and right knee), constant nausea and neck pain. I'm lucky, in that my degree of lupus is very mild (so far). I am medicated for it, which helps, and thus far my autoimmune system hasn't attacked any serious organs. I know people who have kidney and liver or heart disease from lupus, and people who have lost eyesight and mobility. My paternal grandmother died because of it.
Anyway. I am now feeling even sorrier for myself, and struggling even more to maintain a positive outlook. I am even tireder than I was when my problems were "just" mental/emotional. The way I beat fibromyalgia and controlled my lupus in 2005 when I was first diagnosed was through fairly strict mind/body medicine - predominantly meditation and diet, as well as the medication.
I just don't think I have the energy it will take to get well again.
Last time I was ill, my mental state was strong, I was in (what seemed then to be) a supportive marriage, I was barely working in a casual job. Basically, I had a lot in the positives column. Now...it seems like things were just starting to take shape for me in my new work/home, and BANG, life throws me a curve ball. Ain't it always the way.
Neil is even more concerned than before, now I'm even more bedridden and exhausted and complaining. I have to make an appointment to see my specialist and find out if my medication needs changing. There really is only one medication for lupus (Plaquenil) but maybe I need more, or something new might have become available. I was so complacent and cocky... I thought I had the lupus whipped.
My mental state has kind of taken a back seat at the moment. I'm feeling okay, coping mostly with work and getting on well with my adorable man. Big picture is kind of blurry. Finer points are kind of rough round the edges. I haven't felt BPD-ish for quite some time, which is mostly (I think) due to the basic CBT/DBT I have ingrained in me, as well as the medication and a strong relationship based on honesty and boundaries. But the scary part is, I feel like I may be slowly unravelling. If I have lost control of my physical health, is my mind the next thing to go??
Title from Perth band Birds of Tokyo's song "Plans".
Showing posts with label mindfulness. Show all posts
Showing posts with label mindfulness. Show all posts
Monday, May 2, 2011
Sunday, July 5, 2009
It's The End Of The World As We Know It
And I feel fine (as the song goes).
This week's session with Dr A focused mainly on the two tasks he's set for me as homework. A while back he mentioned that me getting my driver's licence would be a huge benefit, not only in practical terms but also because it would mean I had conquered a life-long fear. He's right, and it's not like I haven't already thought of that myself... but the actual physical task of going and getting my Learner's Permit (for the SIXTH time) is beyond me at the moment. However, I have promised to visit the licensing website and do the online Learner's test as practice, and also to find out the costs involved. I first got my Learner's Permit when I turned 17 (the legal driving age in Western Australia), and was also given a car by my beloved grandfather. The car, a 1972 Ford Cortina, had been his and when he died a few months later I wondered if the loss of freedom (he never got another car) had finished him off. I moved to the city a few months after my birthday, leaving the car with my parents until I eventually decided to sell it (having only had a few lessons and not really ever feeling comfortable with the idea of driving in our country town, let alone the Big City). I've had other goes at learning to drive, with varying success, but I've never booked a driving test - the idea of having to park on command, and to follow complicated instructions from the examiner, seems to negate the fact that I am actually a fairly competent driver (according to the various instructors I've had over the last 22 years).
My second piece of homework involves Mr Ex, and the fact that our 12 months' legal separation was completed this week. I downloaded the paperwork (don't you love the technological age) for the divorce but had yet to broach the subject with Mr Ex, especially as last weekend he came along to my Bowling Birthday Party and we had a great time. Not a "getting back together, happy every after" great time, but a great time nonetheless. Dr A had a bit of a go at me for the mixed messages I was sending out willy-nilly... especially to myself. I definitely DO NOT want to be married - to anyone. But that fact remains that I adore Mr Ex, for all his faithlessness and foibles (and by that I don't mean "infidelity". Blame Wandering Coyote's deep thoughts here for the use of the word "faithless" haha). Part of my worries about him, whether he thinks we'll get back together, whether he will do something self-harming. But, in the spirit of "Being In Therapy" I agreed with Dr A that the paperwork needs to be addressed. I printed it all out today and was planning to deal with it when Mr Ex came over to walk his dog. My best-laid plans were thwarted when Mr Ex texted me to say he can't come over today. At least the papers are printed and filled out, and in reality I don't need Mr Ex's permission or signature to file them. I do, however, need an amount of cash to go with said papers. Ouch.
Apart from these nagging administrative tasks, my life continues to sail along. I start my new hours tomorrow, which sees me working every second Monday along with Tues, Wed and Fri each week. On the opposing Monday I see Dr A. Which still gives me Thursdays to sleep in, vege out, blog and blog-visit and see friends. I think I will manage, it's a fine compromise, and having some extra money is always welcome. I can save up to get divorced - blah. I still haven't written to my friend H, who sent me the out-of-the-blue birthday presents. I've been thinking about it, and intend to do it, it's another one of those "when I have the energy" tasks. Being mental is exhausting lol.
One area I need to watch is the continuing urge I have to over-achieve at work. Given that work was my area of downfall prior to this most recent breakdown, I've really been keeping track of my thoughts and emotions at work - and during the week I had a weird "showing off" hypermanic episode. I still crave validation and approval constantly, and have to fight the urge to pursue it from my superiors at work. It's one thing to do my job well, but another thing to undermine other staff, over-achieve, big note myself and get breathless and giddy when I'm given praise. The best thing was, though, that I caught myself in Emotion Mind (as DBT would call it) and could step back and use Reasonable Mind to see the situation for what it was - thereby stopping the roundabout before it got going. Something that might have progressed and spun out of control, was dealt with fairly quickly. Being only low-dose medicated also helped, because I am not as numb/blunted these days I'm more aware of my changes in physiology (heightened colour/warmth, faster breathing, shaking hands, talking faster) which sometimes come along with my Emotion Disregulation episodes.
This week's session with Dr A focused mainly on the two tasks he's set for me as homework. A while back he mentioned that me getting my driver's licence would be a huge benefit, not only in practical terms but also because it would mean I had conquered a life-long fear. He's right, and it's not like I haven't already thought of that myself... but the actual physical task of going and getting my Learner's Permit (for the SIXTH time) is beyond me at the moment. However, I have promised to visit the licensing website and do the online Learner's test as practice, and also to find out the costs involved. I first got my Learner's Permit when I turned 17 (the legal driving age in Western Australia), and was also given a car by my beloved grandfather. The car, a 1972 Ford Cortina, had been his and when he died a few months later I wondered if the loss of freedom (he never got another car) had finished him off. I moved to the city a few months after my birthday, leaving the car with my parents until I eventually decided to sell it (having only had a few lessons and not really ever feeling comfortable with the idea of driving in our country town, let alone the Big City). I've had other goes at learning to drive, with varying success, but I've never booked a driving test - the idea of having to park on command, and to follow complicated instructions from the examiner, seems to negate the fact that I am actually a fairly competent driver (according to the various instructors I've had over the last 22 years).
My second piece of homework involves Mr Ex, and the fact that our 12 months' legal separation was completed this week. I downloaded the paperwork (don't you love the technological age) for the divorce but had yet to broach the subject with Mr Ex, especially as last weekend he came along to my Bowling Birthday Party and we had a great time. Not a "getting back together, happy every after" great time, but a great time nonetheless. Dr A had a bit of a go at me for the mixed messages I was sending out willy-nilly... especially to myself. I definitely DO NOT want to be married - to anyone. But that fact remains that I adore Mr Ex, for all his faithlessness and foibles (and by that I don't mean "infidelity". Blame Wandering Coyote's deep thoughts here for the use of the word "faithless" haha). Part of my worries about him, whether he thinks we'll get back together, whether he will do something self-harming. But, in the spirit of "Being In Therapy" I agreed with Dr A that the paperwork needs to be addressed. I printed it all out today and was planning to deal with it when Mr Ex came over to walk his dog. My best-laid plans were thwarted when Mr Ex texted me to say he can't come over today. At least the papers are printed and filled out, and in reality I don't need Mr Ex's permission or signature to file them. I do, however, need an amount of cash to go with said papers. Ouch.
Apart from these nagging administrative tasks, my life continues to sail along. I start my new hours tomorrow, which sees me working every second Monday along with Tues, Wed and Fri each week. On the opposing Monday I see Dr A. Which still gives me Thursdays to sleep in, vege out, blog and blog-visit and see friends. I think I will manage, it's a fine compromise, and having some extra money is always welcome. I can save up to get divorced - blah. I still haven't written to my friend H, who sent me the out-of-the-blue birthday presents. I've been thinking about it, and intend to do it, it's another one of those "when I have the energy" tasks. Being mental is exhausting lol.
One area I need to watch is the continuing urge I have to over-achieve at work. Given that work was my area of downfall prior to this most recent breakdown, I've really been keeping track of my thoughts and emotions at work - and during the week I had a weird "showing off" hypermanic episode. I still crave validation and approval constantly, and have to fight the urge to pursue it from my superiors at work. It's one thing to do my job well, but another thing to undermine other staff, over-achieve, big note myself and get breathless and giddy when I'm given praise. The best thing was, though, that I caught myself in Emotion Mind (as DBT would call it) and could step back and use Reasonable Mind to see the situation for what it was - thereby stopping the roundabout before it got going. Something that might have progressed and spun out of control, was dealt with fairly quickly. Being only low-dose medicated also helped, because I am not as numb/blunted these days I'm more aware of my changes in physiology (heightened colour/warmth, faster breathing, shaking hands, talking faster) which sometimes come along with my Emotion Disregulation episodes.
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